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PDF Informed Consent in Social Research: A Literature Review
This review outlines the regulatory, ethical and legal context for consent in social research and the operationalisation of informed consent in practice. This review was conducted as part of a project funded within the ESRC Research Methods Programme 2002-2004. Further information about the project can be found at:
Informed Consent in Social Research: A Literature Review
Request PDF | On Mar 15, 2005, Rose Wiles and others published Informed Consent in Social Research: A Literature Review | Find, read and cite all the research you need on ResearchGate
Informed Consent in Social Research: A Literature Review
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Focuses primarily on consent in relation to qualitative research comprising 'traditional' methods of data collection, such as interviews and observation. It does not does not engage with the many complex ethical ...
Informed Consent
Informed consent, which is ethically essential in most clinical research, respects persons' rights to decide whether participation in the research is compatible with their interests, including ...
Implementing continuous consent in qualitative research
Facilitating free and informed consent is a key ethical standard to consider when conducting social research. The principle of informed consent was formalized to help create research relationships that are founded on 'trust and integrity' and aims to safeguard people's freedom to decide whether or not to participate in research.An important criterion for consent's validity is that an ...
A Modern History of Informed Consent and the Role of Key Information
A Modern History of Informed Consent and the Role of Key ...
Informed Consent and Ethical Research
Informed consent includes the following elements: disclosure, comprehension, voluntariness, competence, and consent (Faden et al. 1986, p. 274).Thus, informed consent presumes that the subject receives enough information on the study, understands the information presented, and is capable of making a decision to participate in the study voluntarily (without manipulation or pressure) and that ...
NCRM Methods Review Papers NCRM/001 Informed Consent in Social Research
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Given the rapidly changing nature of the field it draws primarily on literature published between 1998-2004. However, it includes some papers and books published prior to this where these are viewed as having made an important contribution to issues and debates ...
When is it impractical to ask informed consent? A systematic review
In general, informed consent can be modified or waived after assessment by a research ethics committee. To grant such a modification or waiver, various ethical guidelines have been developed that describe conditions that must be met the following: research must have social value or serve a public good; it must involve minimal risk; and informed consent must be impractical to obtain for ...
Informed Consent—We Can and Should Do Better
Informed Consent—We Can and Should Do Better | Ethics
Meaningful consent to participate in social research on the part of
In a helpful review of the literature on informed consent in social research, Wiles et al [1] note that the Human Rights Act 1998 'protects the right to respect for private and family life and thus supports the need for consent to participate in research' where children and vulnerable adults are concerned.
Study participants and informed consent
Study participants and informed consent
Informed Consent with Children and Young People in Social Research: Is
Over 20 years of research has enhanced our understanding about the methodological and ethical benefits and challenges of involving children and young people in research. Concurrently, the increasing bureaucratisation of research ethics governance within UK universities has reified expectations about the methods used to gain informed consent for ...
NCRM Methods Review Papers NCRM/001 Informed Consent in Social Research
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Given the rapidly changing nature of the field it draws primarily on literature published between 1998-2004. However, it includes some papers and books published prior to this where these are viewed as having made an important contribution to issues and debates ...
How to obtain informed consent for research
How to obtain informed consent for research - PMC
The informed consent process in health research with under-served
The informed consent process aims to provide potential participants with information about health research that enables them to make an informed decision as to whether they choose to participate, or not. However, it remains unclear as to whether the process is effective for those who are under-served in health research. It is a pivotal issue within health research that the diversity of people ...
When is it impractical to ask informed consent? A systematic review
When is it impractical to ask informed consent ...
Informed Consent and the Research Process: Following Rules or Striking
This paper reports on a project funded by the UK Economic and Social Research Council (ESRC) which was concerned to identify and disseminate best practice in relation to informed consent in research with six such groups. The context for the study is the increased attention that is being paid to the issue of informed consent in research, not ...
The reality of informed consent: empirical studies on patient
The reality of informed consent: empirical studies on patient ...
Digital tools in the informed consent process: a systematic review
Providing understandable information to patients is necessary to achieve the aims of the Informed Consent process: respecting and promoting patients' autonomy and protecting patients from harm. In recent decades, new, primarily digital technologies have been used to apply and test innovative formats of Informed Consent. We conducted a systematic review to explore the impact of using digital ...
Digital tools in the informed consent process: a systematic review
Digital tools in the informed consent process: a systematic ...
Use of social network analysis in health research: a scoping review
Introduction Social networks can affect health beliefs, behaviours and outcomes through various mechanisms, including social support, social influence and information diffusion. Social network analysis (SNA), an approach which emerged from the relational perspective in social theory, has been increasingly used in health research. This paper outlines the protocol for a scoping review of ...
Communicating Risks and Benefits in Informed Consent for Research: A
The informed consent process for clinical research requires good communication of study risks and benefits by the consent administrator so that potential research participants can decide whether or not to participate (Council for International Organizations of Medical Sciences [CIOMS], 2016; International Conference on Harmonisation [ICH], 1996; U.S. Department of Health and Human Services ...
Review of sexual abuse in schools and colleges
Previous research on this topic identified that, when children and young people did talk about sexual harassment and sexual violence, including online, this resulted in social isolation and the ...
Communicating Risks and Benefits in Informed Consent for Research: A
Communicating Risks and Benefits in Informed Consent for ...
Understanding the experiences of receiving and providing maternity care
The perinatal period (pregnancy and 1 month post-birth) has been identified as a critical stage for a range of maternal and infant health and well-being outcomes (Misra et al., 2003).Despite calls for the prioritisation of research on women and girls by the autism community (Pellicano et al., 2014), and the increase in women with a diagnosis (Loomes et al., 2017), there remains limited ...
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This review outlines the regulatory, ethical and legal context for consent in social research and the operationalisation of informed consent in practice. This review was conducted as part of a project funded within the ESRC Research Methods Programme 2002-2004. Further information about the project can be found at:
Request PDF | On Mar 15, 2005, Rose Wiles and others published Informed Consent in Social Research: A Literature Review | Find, read and cite all the research you need on ResearchGate
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Focuses primarily on consent in relation to qualitative research comprising 'traditional' methods of data collection, such as interviews and observation. It does not does not engage with the many complex ethical ...
Informed consent, which is ethically essential in most clinical research, respects persons' rights to decide whether participation in the research is compatible with their interests, including ...
Facilitating free and informed consent is a key ethical standard to consider when conducting social research. The principle of informed consent was formalized to help create research relationships that are founded on 'trust and integrity' and aims to safeguard people's freedom to decide whether or not to participate in research.An important criterion for consent's validity is that an ...
A Modern History of Informed Consent and the Role of Key ...
Informed consent includes the following elements: disclosure, comprehension, voluntariness, competence, and consent (Faden et al. 1986, p. 274).Thus, informed consent presumes that the subject receives enough information on the study, understands the information presented, and is capable of making a decision to participate in the study voluntarily (without manipulation or pressure) and that ...
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Given the rapidly changing nature of the field it draws primarily on literature published between 1998-2004. However, it includes some papers and books published prior to this where these are viewed as having made an important contribution to issues and debates ...
In general, informed consent can be modified or waived after assessment by a research ethics committee. To grant such a modification or waiver, various ethical guidelines have been developed that describe conditions that must be met the following: research must have social value or serve a public good; it must involve minimal risk; and informed consent must be impractical to obtain for ...
Informed Consent—We Can and Should Do Better | Ethics
In a helpful review of the literature on informed consent in social research, Wiles et al [1] note that the Human Rights Act 1998 'protects the right to respect for private and family life and thus supports the need for consent to participate in research' where children and vulnerable adults are concerned.
Study participants and informed consent
Over 20 years of research has enhanced our understanding about the methodological and ethical benefits and challenges of involving children and young people in research. Concurrently, the increasing bureaucratisation of research ethics governance within UK universities has reified expectations about the methods used to gain informed consent for ...
This paper comprises a literature review outlining the current issues and debates relating to informed consent in social research. Given the rapidly changing nature of the field it draws primarily on literature published between 1998-2004. However, it includes some papers and books published prior to this where these are viewed as having made an important contribution to issues and debates ...
How to obtain informed consent for research - PMC
The informed consent process aims to provide potential participants with information about health research that enables them to make an informed decision as to whether they choose to participate, or not. However, it remains unclear as to whether the process is effective for those who are under-served in health research. It is a pivotal issue within health research that the diversity of people ...
When is it impractical to ask informed consent ...
This paper reports on a project funded by the UK Economic and Social Research Council (ESRC) which was concerned to identify and disseminate best practice in relation to informed consent in research with six such groups. The context for the study is the increased attention that is being paid to the issue of informed consent in research, not ...
The reality of informed consent: empirical studies on patient ...
Providing understandable information to patients is necessary to achieve the aims of the Informed Consent process: respecting and promoting patients' autonomy and protecting patients from harm. In recent decades, new, primarily digital technologies have been used to apply and test innovative formats of Informed Consent. We conducted a systematic review to explore the impact of using digital ...
Digital tools in the informed consent process: a systematic ...
Introduction Social networks can affect health beliefs, behaviours and outcomes through various mechanisms, including social support, social influence and information diffusion. Social network analysis (SNA), an approach which emerged from the relational perspective in social theory, has been increasingly used in health research. This paper outlines the protocol for a scoping review of ...
The informed consent process for clinical research requires good communication of study risks and benefits by the consent administrator so that potential research participants can decide whether or not to participate (Council for International Organizations of Medical Sciences [CIOMS], 2016; International Conference on Harmonisation [ICH], 1996; U.S. Department of Health and Human Services ...
Previous research on this topic identified that, when children and young people did talk about sexual harassment and sexual violence, including online, this resulted in social isolation and the ...
Communicating Risks and Benefits in Informed Consent for ...
The perinatal period (pregnancy and 1 month post-birth) has been identified as a critical stage for a range of maternal and infant health and well-being outcomes (Misra et al., 2003).Despite calls for the prioritisation of research on women and girls by the autism community (Pellicano et al., 2014), and the increase in women with a diagnosis (Loomes et al., 2017), there remains limited ...